Keegan’s ER Update (part one)

Hey there #teamkeegan !!!
We’ve had yet another rough week following our last hospital stay that landed us in the hospital at UC Davis this time.
First a little back story… Keegan developed these pustules that spread into a difficult to manage rash that we thought for a minute was MRSA (GASP 😱 that was a good scare). It all started back on March 23. We spent a month trying to treat/manage it topically, but noticed swelling in his feet that became persistent. One morning I noticed his right foot was hot tobthe touch and he jerked away when I touched it… Ended up seeing out Ped on April 24 at which point we decided to start oral antibiotics. On the 26th I noticed his right arm and leg were trembling/spasming and thought that was concerning so we were sent to do labs, they came back normal. I woke up in the 27th to Keegan wailing in pain and an unrecognized cry which had me worried he was having a seizure. We were taken via ambulance to the ER, and admitted for 5 days. Extensive testing and everything kept coming back unremarkable… After some broad spectrum iv antibiotics, multiple labs, several ultrasounds, X-rays, 2 different MRIs we still couldn’t figure out why Keegan was guarding his hip and showing increased tone on his right side… We were sent home to follow up with our team and also getting in to see a Cardiologist about his bradycardia. Since we were released on the 1st Keegan hasn’t been himself. We saw the Peds office and they had concerns. We saw cardio and he had concerns. We got into Neuro and he is concerned… So he sent us to UC Davis to try and actually get to the bottom of things.

Here’s some photos and video documenting our experience thus far.

To be continued…